This terrific group of people joined the organized Walk for ALS in Waterloo this morning. We were Team Curry and all of us completed the 5 km walk with about 250 more people. It was a great time and Jim and I are still overwhelmed by all the personal support we received. He was surprised when 13 people from Quest showed up unexpectedly to join us on the walk and continued to be surprised when they announced that Quest Brands was the corporate sponsor. Our good friend, Bubbles the Clown also came and created balloon sculptures for many little people. Lots of fun. Jim completed the walk in fine style and with energy to spare. It was also good to chat with others who have gone through the ALS journey or are still going through it. Some have participated in these walks for 16 years, That's a commitment! We say thank you to everyone who sponsored us, prayed for us or walked with us. You're the best!
As far as Jim's health goes, we were reminded of the ongoing concerns when we got a call this afternoon from the respiratory therapist who will be coming next week to show us how the Bi-Pap machine works, It will help him get more oxygen when he sleeps. She also mentioned that he will be learning to use a Cough Assist machine. Reality....
Our days are still fairy normal, at least between appointments. He is part of a research study group and has several appointments in London in a two week time span so it feels very busy. However, he can go to these by himself and that frees me up too. He continues to work and his spirits are good. He is so thankful for all the concern shown and can get quite emotional (a normal side effect of the disease).
He is most happy when he can help others and was able to help Matt with building a playground structure. This was very satisfying. Some day that will be too difficult and the memories will have to suffice. We try to create lots of memories!
