Saturday 29 August 2015
Summer Update
August 29, 2015
Alas, the summer is almost over. But it's been a good summer. We were able to spend time at the cottage, traveled for a week to visit Trish and Jay, and had them come to visit us too. Jim spent a week fishing north of Thunder Bay and thoroughly enjoyed his stay there. Time spent with family and friends is always a good thing.
He has been using his Bi-Pap machine regularly while he sleeps and when it is working right, it is very quiet. When it is leaking air, it is very annoying. But that seems to be better now. Once, he had the harness on upside down and it was quite loud! He also has a cough-assist machine which he uses a couple of times a day to help clear his lungs and keep them expanded. His Accent speech machine is being used quite regularly and he is learning to converse with it. Eating and speaking continue to decline. He takes so long to eat that he continues to lose weight. It is hard to try to provide extra food for him between meals and not eat myself. His stuff (like smoothies) tastes so good! Tough on my diet.
Jim's newest machine is a scooter. We got it yesterday and look forward to getting proficient in driving it. It is a mobility scooter meant for outdoor travel. It should be fun to use when we go camping next week. Friends have promised to help us load and unload it into and out of the truck.
What would we do without friends?
Our next appointment with all the specialists is in September. I don't expect they will tell us much new. But it is encouraging to meet with them and share in their knowledge.
Until next time....
Alas, the summer is almost over. But it's been a good summer. We were able to spend time at the cottage, traveled for a week to visit Trish and Jay, and had them come to visit us too. Jim spent a week fishing north of Thunder Bay and thoroughly enjoyed his stay there. Time spent with family and friends is always a good thing.
He has been using his Bi-Pap machine regularly while he sleeps and when it is working right, it is very quiet. When it is leaking air, it is very annoying. But that seems to be better now. Once, he had the harness on upside down and it was quite loud! He also has a cough-assist machine which he uses a couple of times a day to help clear his lungs and keep them expanded. His Accent speech machine is being used quite regularly and he is learning to converse with it. Eating and speaking continue to decline. He takes so long to eat that he continues to lose weight. It is hard to try to provide extra food for him between meals and not eat myself. His stuff (like smoothies) tastes so good! Tough on my diet.
Jim's newest machine is a scooter. We got it yesterday and look forward to getting proficient in driving it. It is a mobility scooter meant for outdoor travel. It should be fun to use when we go camping next week. Friends have promised to help us load and unload it into and out of the truck.
What would we do without friends?
Our next appointment with all the specialists is in September. I don't expect they will tell us much new. But it is encouraging to meet with them and share in their knowledge.
Until next time....
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